“Merko calls for further investigation into the many questions that still exist regarding Parkinson’s disease, as we still know very little. He is extremely investigative in this book and has seen changes over the years that he asks all kinds of questions about. This book is therefore a plea for asking questions and I like the way Merko talks about Parkinson’s. He is not talking about disease and the symptoms of a disease, but he is essentially talking about a mode of being, not the mode of being ill, but the mode of being that belongs to Parkinson’s disease.” Ad Nouws, psychologist with a specialisation in Parkinson’s Disease
“What struck me most is the confirmation of the fact that the writer, as a sort of observer of his own ‘disease’, reports what goes on in his mind. With this, he puts the ‘proof’ on the table that man is not his brain. We are more than that. The form he has chosen is very appealing and takes the reader into the various ‘layers’ that are part of our personality and humanity. A book that medical science should make use of.” Hans Siepel, author of Stemmen van de ziel, Vergeten waarheid van dementia
“For someone claiming not to be a writer, Merko tells his story in the most unique way. In fact, it reminds me of my favorite author, Kurt Vonnegut, who wrote fictionalized versions of the truth he knew. In the same way, Merko dives into an uncomfortable subject, one I am sure readers without Parkinson’s hope will not be part of their own story one day. He uses humor, but also approaches the most important topic of all–human consciousness (not to mention the dualist conversations we have with ourselves in our heads). Consciousness is with us all the time yet talking about it is not a subject a lot of people want to discuss, so I am deeply appreciative of those who do. Merko clearly understands that space is not the final frontier. It is the mind.” JH (review on Goodreads)
“I really enjoyed reading this book. The protagonists are on a quest to find answers and the conversations are filled with humor and wit. It gives you lots of insights into the way a person with Parkinson’s is dealing with his symptoms, but in a light and fun way. It’s the first book I’ve come across that deals with disease, without bringing you down, which makes it enjoyable to read! If you have Parkinson’s or are close to someone that does, I definitely recommend reading it.” Anonymous reader (review on Bookcrossing)